At the MPS SuperHero Foundation, we are driven by a passionate commitment to making a difference in the lives of those affected by MPS (Mucopolysaccharidoses). Our core bylaws reflect our dedication to raising awareness, funding crucial research initiatives, and providing vital support to families facing the challenges of MPS.
Founded by parents intimately familiar with the impact of MPS II, our organization is fueled by the unwavering support of family and friends. Together, we've achieved remarkable success through events like our beloved 5K runs and the thrilling Kickin' for a Cure Kickball Tournaments, cherished traditions in our local community.
Advocacy is at the heart of our mission. We've tirelessly championed the inclusion of MPS I and MPS II on the Recommended Uniform Screening Panel (RUSP), ensuring early detection and intervention for affected individuals. Additionally, we've facilitated crucial dialogues by convening panels featuring leading researchers, esteemed doctors, and representatives from pharmaceutical and biotech companies. These collaborative efforts are propelling forward the research and development of treatments for MPS II. By advocating for early treatment options and facilitating access to clinical trials, we strive to improve the quality of life for affected individuals.
Moreover, we understand the profound emotional and financial toll that MPS can take on families. That's why we're dedicated to providing compassionate support to those in need, offering a lifeline of assistance during challenging times.
Together, as superheroes in the fight against MPS, we're making strides toward a brighter future. Join us in our mission to bring hope, support, and progress to individuals and families affected by MPS. Together, we can make a profound difference.
President / Co-Founder
Vice President / Co-Founder